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• Activities and Societies: Center for Health and Risk Communication Dissertation Abstract: Background: Rare Disease Prevalence is Estimated at 30 Million Patients in the Us. Efforts from Advocacy Organizations and Government Outreach Fail to Address Unique Challenges, Resulting in Alienation, Isolation, Stigma, and Poor Health Outcomes. Methods: Current Ehealth Practices were Compared with Needs Reported by Patients with A Selected Rare Disease Via 1. Content Analysis of A Pre-Eminent Online Advocacy Community and Review of Other Resources 2… Show More Dissertation Abstract: Background: Rare Disease Prevalence is Estimated at 30 Million Patients in the Us. Efforts from Advocacy Organizations and Government Outreach Fail to Address Unique Challenges, Resulting in Alienation, Isolation, Stigma, and Poor Health Outcomes. Methods: Current Ehealth Practices were Compared with Needs Reported by Patients with A Selected Rare Disease Via 1. Content Analysis of A Pre-Eminent Online Advocacy Community and Review of Other Resources 2. Cross-Sectional Surveys (N=57); 3. In-Depth Interviews (N=28); 4. Focus Group (N=12). Findings: Analyzed Qualitatively and Quantitatively, Rare Disease Community Fails to Meet the Needs of Patients. Patients Informally Organizing Reported Reduction in Isolation and Equivocality and were Equipped with Strategies to Manage Their Health. Conclusions: the Considerable Resources of Advocacy Organizations should be Leveraged Using A Patient-Centered Approach to Improve Health Outcomes and Intervention Effectiveness. Show Less
• Master'S Thesis: War and Women’S Health: the Impacts of Post-Colonial Genocide on Women'S Health and Well-Being in Rwanda and DR Congo
• Activities and Societies: Sdfsa and Jade